My Personal Reason For Walking in Take Steps Be Heard

Hi and thank you for visiting Kickin' It for Crohn's and Colitis! My name is Stephanie but my story is more about my daughter Marissa. She is now 17 years old but her digestive problems started when she was a newborn.
Doctors could never diagnose her so she went 12 miserable years being sick and we had no idea why. Finally in 2005 a doctor in St Joseph IL caught the problem after several hours and testing in the ER late one night. So off to see Dr. Hatch who is a peds gastorenterologist at Carle Clinic. Thank God!
Since then Marissa has been on and off several different medicines trying to find that perfect balance that makes her feel good. 6 years later we are still struggling with that, she has never been in
"remission", she always has some type of symptoms of Crohn's Disease. She still has bad days but she's a trooper and tries her hardest to live a normal life.
Our biggest fear are the side effects of her treatment, Remicade that she has injected every 8 weeks. Not only the side effects but also the fact she's been on it for so long she may be developing antibodies to it. If that is the case then she will have to stop the only treatment that has helped alleviate her symptoms. A cure is needed, not just for my daughter but for all of the Crohn's and Colitis sufferers.

Saturday, February 19, 2011




This year our team will be participating in the Take Steps for Crohn's and Colitis Walk at Soldier Field in Chicago. Take Steps is CCFA's national evening walk and celebration as well as the nation's largest event dedicated to finding cures for digestive diseases. We will enjoy a casual 2-3 mile stroll and raise money for crucial research, bringing us closer to a future free of Crohn's Disease and Ulcerative Colitis.
Over 1.4 million American children and adults are affected by these digestive diseases. While many suffer in silence, Take Steps brings together this community in a fun and energetic atmosphere, encouraging them to make noise and be heard!
Your donation will help support local patient programs as well as important research projects. This cause is very important to us and I appreciate your help as we fight for a cure! In addition to joining you can join us at the event as a member of our team. There will be food, music, and kids' activities! The more money we raise the closer we will be to making life more manageable for patients who live with these diseases every day.
Please join our team or donate to our efforts to support CCFA in finding a cure!
The Kickin' It For Crohn's and Colitis Team
(CCFA Illinois Chapter)
To see photo slideshows please scroll to bottom!
Thanks for your support!
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